One of my beloved friends have made a Facebook Group called "Stand Up To CIPA" - it is for all CIPA sufferers, people who know someone with CIPA and for all the wonderful people who wants to help!
I am a girl from Denmark born in early 1993. About 1 year old, I was diagnosed with an extremely rare inherited disorder, CIPA (Congenital insensitivity to pain with anhidrosis), of the nervous system which prevents the sensation of pain, heat, and cold — or any real nerve-related sensations. This means my life is not very easy as I have to check myself for problems ALL THE TIME!
WE STAND UP TO CIPA !
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